Rohit Gotecha

Founder of Ved Thalassemia support Foundation

Rohit Gotecha

Founder of Ved Thalassemia support Foundation



Kajal Gotecha

Co-Founder of Ved Thalassemia support Foundation

Kajal Gotecha

Co-Founder of Ved Thalassemia support Foundation



Ankit jobanputra

Helping Hand of Ved Thalassemia support Foundation

Ankit jobanputra

Helping Hand of Ved Thalassemia support Foundation



Varsha Vaswani

Helping Hand of Ved Thalassemia support Foundation and a Thalassemia Patient

Varsha Vaswani

Helping Hand of Ved Thalassemia support Foundation and a Thalassemia Patient

What is Thalassemia Major ?

It is a Genetic Disorder Which affects the production of Blood. Thalassemia Major Patients' body do not Produce Red Blood Cells , Which are essential to transfer the oxygen in the body. So They have to undergo regular Blood Transfusion. That is very painful for children.

This is a genetic disease , if both mother and father are Thalassemia minor then it is a high possibility that child will born with Thalassemia major

How Does it happen ?

This is a genetic disease , if both mother and father are Thalassemia minor then it is a

high possibility that child will born with Thalassemia major If the mother or father is thalassemia minor in any person, then the child will be born as a minor or normal.

If both mother and father are thalassemia minor, then the child has 75% chance of being born with thalassemia major

Symptoms of thalassemia may vary: Some of the most common ones include:

  • Bone degeneration, especially on the face
  • Deep urine
  • Delayed development and development
  • Excessive fatigue and fatigue
  • Yellow or yellow skin

Are there different types of Thalassemia?

Alpha Thalassemia appears in people whose haemoglobin does not produce enough alpha protein. There are five types of alpha Thalassemia:

  • Silent Carrier
  • Alpha Thalassemia Trait
  • Haemoglobin H Disease
  • Haemoglobin H – Constant Spring
  • Alpha Thalassemia Major

How do you know if you have Thalassemia?

Thalassemia can be detected in utero if the parents know that they are carriers through

a prenatal test called chorionic villus sampling (CVS). If the parents are unaware that they are carriers, blood tests after birth will result in a diagnosis. Symptoms of Thalassemia include the following: paleness of the skin, poor appetite, failure to grow normally, jaundice, severe anaemia, enlargement of the spleen. Thalassemia is usually diagnosed through the use of blood tests showing small abnormally shaped red blood cells and/or a haemoglobin electrophoresis showing abnormal haemoglobin.

Following are Problems that Thalassemia patient faces in the life :-

  • Regular Blood Transfusion
  • Their Phyical growth is very less than a normal person

  • Teeth imbalance
  • Increase in Feratine with every blood Transfusion
  • implantation of faratine (loh element) on various body organs, which damage the body organs. and in some cases that can destroy organ
  • Regular Blood tests to check heamoglobin level.
  • Regular Injections and pills to control Feratine Level

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